Finally!!!! Summer is here! May & Junes visits to NIH were wonderfully uneventful. Julia's condition remains stable. We are back @ NIH, as I type, for our July visit. Julia got her cyclo infusion this morning & everything went well. Because it's summer, Rebecka was able to come with us too. We are enjoying showing her around. Julia is especially enjoying introducing all her friends here to her big sister :) Tomorrow & Wednesday we should have some more free time & Georgetown cupcakes in our list of places to visit as well as maybe the Smithsonian Museum.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com