Things have been going really well. We have been @ NIH this past week & get to go home tomorrow. Julia got her cyclodextrin infusion Monday with no issues as usual. We got to meet another family this time, Cody & Kayla. Julia had really been looking forward to meeting another girl & they got along very well. Hoping maybe next month they will get to spend a little more time together. I didn't post anything in Feb but we did come up to NIH & Julia got the Cyclo. Feb was just such a busy month I got behind. Both my girls celebrated a birthday in Feb. They are now officially 17 & 14! And I'm getting old, lol. I'm going to go & try & do a little back dated updating because there have been some really cool happenings that I've neglected to post about.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com