Back for our monthly visit @ NIH. All done with todays appt's, going to cut uot of the hospital for the day & maybe go on the free trip to the movies this evening. Sounds like a good time to me. Tomorrow will be spent here @ the hospital for her medicine dosage :) Hope everyone stays warm!!!!
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com