Julia did awesome as usual during her LP. I wish I had 1/2 of her bravery. We had kind of a lazy day yesterday, just laying around afterwards, but as Dr. Porter says boring is good. Boring means there is nothing unexpected going on. Today we had a couple of blood draws but otherwise alot of free time. We spent it hanging out with our friends & going to a Christmas party hosted @ the clinical center for the kids. Julia enjoyed it & got to see Santa Claus! He even had a huge gift bag for each child. It was really cool! :) We only have one more blood draw tomorrow & one friday morning & then we fly home friday evening.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com