So here we go again. We have talked to the doctors @ NIH & are ready to begin our journey again where we left off. Julia is a little nervous as am I, but we can't just stop here. If we do then everything we have been through has been for nothing, & we can't live with that. We are not ready to giveup our fight yet, we just had to regroup & renew our strength to continue on. Julia & I will fly to Md & she will have surgery on apr 22nd to inplant the new Ommaya so we can continue on.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com