The weekend flew by. Usually it's just Julia & I here but this weekend we had visitors, not once but twice! What a nice change. On saturday my cousin Wendy & her husband Jason who live about 45 min away in Va, drove over & took us to lunch & we out with them for several hours before they brought us back to The Childrens Inn & we showed them around a little. They also had a goody bag for Julia for her birthday filled with all kinds of stuff that made her smile :) Then on Sunday Ms Cindy from home flew in to visit her daughter & son who live in Va. Cindy & her daughter Kim came & picked us up & took us to dinner @ her sons home. We had alot of fun! During this visit we have met a 20 yr old young man named Chris & his parents. Like Julia, Chris is also fighting NPC. Tonight we went to dinner in a nearby town, Frederick @ Fosters Grille to support Dillon's Night with Chris & his mom. Every 1st Monday of the month this restaraunt donates 30% of it's sales to Dillon's Fight For a Cure. Dillon is a local 10 year old boy also fighting NPC who became Julia's friend when we met him during our last visit to NIH. I was blown away by the support shown @ Foster's Grille, the place was packed!! It was very nice getting out & away this weekend. Thanks to everyone that visited us & helped us get away!!!
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com