We made it home finally!! Today is actually 1 week since we arrived home. I am very surprised how easy it has been to slip back into our "normal" routine. I think Julia is made of rubber because she has just bounced right back with no problem. We have about 4 more days of antibiotics left & then we are clear. We have not yet made any decisions about going back to continue on in the trial. The doctors are sorting through a few things & making a few changes to the protocol. In the meantime we are taking the approach of sittign back & watching how things play out before we make any rash decisions. The one thing I do know is it is so good to be home & God is still good!
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com