This weekend we were able to come down to the Childrens Inn. We sat this morning & watched the snowfall & the deer outside our patio again :) Tonight we will head back up to the hospital again to skype with Jason & Rebecka while we watch the Super Bowl. We have a friendly rivalry going on, we are rooting on the local team "Go Ravens!" while they have claimed the 49ers. Whoever's team loses has to cook a full course meal for the others :)
Tomorrow morning Julia is set to recieve the cyclodextrin for the first time. We are extremely excited about this, but also a teeny bit apprehensive. I know that God has her wrapped firmly in his arms though. Still it is the 1st time in the US that achild will recieve this medicine directly to the brain.
I will be adding some recent picture later today so go check those out if you want on the family photos page. WHile it hasn't been al fun & games, we have managed to really make the most of our free time wi