Thats how my baby came through surgery today! Praise God! This is a picture of her an hour after her surgery, sitting up eating eggs & bacon. She was talking & moving all of her parts. Everything seems completely normal & she is recovering as expected if not better! The doctors & nurses are taking excellant care of her & she is the "Rockstar" of the ICU :) We will stay here a few days (3-4) & then go back downstairs to her regular room. Hopefully we will spend the weekend back @ The Childrens Inn accross the street. I am adding pictures to the family pictures page daily so check there too if you want.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com