It feels kind of like we are starting the next chapter in our journey. This chapter is full of hope! We made it to Md safely, it ws 25 degrees outside when we landed, brrrrrrr. We got checked into our room @ The children's Inn about 8:30 tonight. All is well & we will head up to the hospital tomorrow to start all the consent & addmissions paperwork & meet with doctors. It will be a busy but good day.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com