decision we came to. It's scary but super exciting. In January Julia will start
a clinical trial of a new medicine called cyclodextrin. It is going to require
monthly 5 day visits to NIH in MD, so I am taking an intermittent leave of
absence @ work. It is also going to require surgery (this is the scary part) to
install a port in her brain called an ommaya resevior that will be used to
deliver the medicine. We have the utmost trust in the doctors & faith that
God is in control. This gives us renewed hope for Julia's long term future.
Prayers would still be appreciated as we continue on this journey :)