Merry Christmas everyone!!! Hope everyone enjoyed thier day. We did dispite a few hiccups. We managed to make it home around 2 am Dec 24th & got a little sleep before waking up & throwing ourselves into all the normal Christmas Eve activities. We finnished off our evening with Christmas Eve church service & a little visiting with friends. I think we made it to bed around 2 am after Santa finally came :) Julia was restless & didn't truly settle down into a good sleep until late. She also had been compaining of a mild headache that went away when she lay down, so we called Nicole @ NIH just to check in & make sure how to proceed. It kinda threw us all for a loop because this was one of the possible side effects of the lumbar puncture but she should have experienced it several days ago if she was going to @ all. Nicole reasured us to just keep her resting, give her caffiene, (this made Julia happy, it's not every day the doctor prescribes Mt Dew for a child :) ) & give her motrin. Christmas mornig she was up bright & early, but proceeded to vomit once right after breakfast & still had her headache only when upright :( We checked in with Nicole once more but she said all is well, as long as Julia doesn't become lethargic or vomit to hte point that she can't keep any food down. That certainky has not been the case. Although she hasn't been quite as energetic today as usual she certainly had her share of fun playing with her cousins & her new toys from Santa :) I'm praying tomorrow brings the end of her headache. Hopefully I will get some pictures up tomorrow rom our trip, thier certainly are lots of nice ones :) Good night all!!
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com