We had a great family camping trip this past weekend. Julia enjoyed sleeping in a tent & sleeping bag for the first time. Marking that down as a new entry on our list of family favorite pastimes. Julia is doing very well on the medicine overall. She does have diarhea pretty much all the time but, her accidents have been very infrequent, thank heaven, & seem to correlate with increased physical activity. In other words the more she runs around & acts like a kid the more accidents she has. Thank goodness for Goodnights disposables. Hey, it could be alot worse, she's still running & playing & being a kid, in the whole scheme of things I'll take it :) She's one tuff cookie.
Please feel free to check in as often as you like. I'm going to try to keep adding updates as often as I can or as they are relevant. Our main goal with this website is to bring awareness to Niemann Pick Disease and tell the story of our little girl. I truly believe God sent us an angel when he sent Julia to us :)
Email us @ Juliasjourney@outlook.com